We seek to provide a network of support for patients and families affected by Sickle Cell Anemia; to raise awareness and educate the community; and to advocate for a cure.
We are patients, moms, dads, healthcare providers, and social workers who care deeply about the Sickle Cell community.
Sickle Cell Partners of the Carolinas is a non-profit 501c (3) tax exempt organization that exists to "partner" with any organization that is working to make a difference in the lives of patients and families affected by Sickle Cell Anemia.
Sickle Cell Partners of the Carolinas was formed in January of 2009. It was at that time that patients, families and members of the medical community came together informally to meet and discuss ideas involving care and support in the Sickle Cell community. From there, Sickle Cell Partners of the Carolinas came into being and is an organization that consists of patients of all ages; families; caregivers; healthcare workers; social workers and an at large community that cares deeply about those affected by Sickle Cell Anemia.
The original founders of the organization included patients, families and members of the medical community. The need for a support group was expressed to engage patients and families affected by Sickle Cell Anemia, Sickle Cell Trait, and Thalassemia. From the beginning, the organization has sought ways to make these health conditions a part of the medical dialogue in our homes, in our schools and in the community.
To help raise awareness, Sickle Cell Partners has taken part in the HopeBuilders 5K Walk/Run which is sponsored by Levine Children's Hospital in Charlotte, NC. In its inaugural year, Sickle Cell Partners of the Carolinas was among the top three in the small group category that raised the most funds for the HopeBuilders 5K/Walk Run in 2009. Sickle Cell Partners of the Carolinas has published several newsletters which has given patients, families and caregivers a platform to discuss their health experiences and to offer advice to those who may be in need.
Sickle Cell Partners of the Carolinas has held various meetings and gatherings for the Sickle Cell community where such topics as health and wellness; insurance plans and coverage; social security benefits; disability benefits; community outreach; education plans and general care have all been addressed. Sickle Cell Partners of the Carolinas has provided an opportunity for those affected by these inherited blood disorders to come together and have conversations, outside of the walls of medical facilities, to discuss the trial and tribulations many patients and their families face battling the inherited conditions of Sickle Cell Anemia, Sickle Cell Trait, and Thalassemia.
We envision a world that will one day be free of Sickle Cell Anemia and other related inherited blood disorders. We envision an open, honest and continuing dialogue for a cure for those who suffer from Sickle Cell Anemia.